09-03-2011, 01:28 PM
Hey,
After finally getting fed up with my local doctors and getting refered to Prof Pinchings dept, i figured i'd sign up on th MESH forums aswell.
I'm Nick 35 and in Cornwall. I was diagnosed with ME/cfs about 8 years ago now. the doctor explained that she didnt believe in ME but if she did then that is definatley what i had....
That was my first of many negative experiences with GP's. Since then i have slowly done away with making doctors visits as i always come away from them somewhat disheartened as if i must be a little mad in the head to suggest my severe tiredness and confusion is an illness.
My illness tends to come and go where i may be fine for months as long as im careful and then over a period of a few days i can feel a knowing ache or my eyes start blurring or i get severe numbness in my legs along with the usual fatigue. having to prop myself up against a wall to do the dishes is my latest telltale sign
.
Im lucky that im self employed and limit myself to 15 to 20 hours a week. I occasionally manage the gym or walks etc but they are often responsible for huge relapses. i havent had any severe confusion or "brain fog" in a while. it used to get so bad that i couldnt speak coherently.
Guilt was a big problem for me for a long time thinking that i must be just lazy or unfit or something and my siblings not understanding was hard to deal with.
Staying inside and not being social led to a number of anxiety problems and i guess a bit of depression however, i seem to be really on top of those negative aspects these days.
Im lucky to have a partner who is very patient and understanding (plus a degree in counselling helps lol).
other silly or maybe important things ive noted are
*i take omeprazole for jumpy acid and if ever i stop taking it i ALWAYS get my ME/cfs symptoms back for weeks and weeks
*I have signs of having had glandular fever but have no re3collection of this
*illness started as severe flu after wild camping in the lake district however the doctors tell me not to even consider lyme's disease as its really rare.( this i have tried fighting as prior to thgis i was an outdoor instructor and spend many weeks of a year in wales/scotland hill walking and camping etc etc).
*I disagree that CBT is effective in treating ME and have found the easist way is to start by doing NOTHING and then slowly create a routine and add to my daily routine and just monitor how im feeling.
Anyways. this was only meant to be a quick introduction and a chance to say hi but guess im feeling vocal today.
Its great to have found a forum linked to this and i really cant believe i didnt think about looking for one before.
After finally getting fed up with my local doctors and getting refered to Prof Pinchings dept, i figured i'd sign up on th MESH forums aswell.
I'm Nick 35 and in Cornwall. I was diagnosed with ME/cfs about 8 years ago now. the doctor explained that she didnt believe in ME but if she did then that is definatley what i had....
That was my first of many negative experiences with GP's. Since then i have slowly done away with making doctors visits as i always come away from them somewhat disheartened as if i must be a little mad in the head to suggest my severe tiredness and confusion is an illness.
My illness tends to come and go where i may be fine for months as long as im careful and then over a period of a few days i can feel a knowing ache or my eyes start blurring or i get severe numbness in my legs along with the usual fatigue. having to prop myself up against a wall to do the dishes is my latest telltale sign
. Im lucky that im self employed and limit myself to 15 to 20 hours a week. I occasionally manage the gym or walks etc but they are often responsible for huge relapses. i havent had any severe confusion or "brain fog" in a while. it used to get so bad that i couldnt speak coherently.
Guilt was a big problem for me for a long time thinking that i must be just lazy or unfit or something and my siblings not understanding was hard to deal with.
Staying inside and not being social led to a number of anxiety problems and i guess a bit of depression however, i seem to be really on top of those negative aspects these days.
Im lucky to have a partner who is very patient and understanding (plus a degree in counselling helps lol).
other silly or maybe important things ive noted are
*i take omeprazole for jumpy acid and if ever i stop taking it i ALWAYS get my ME/cfs symptoms back for weeks and weeks
*I have signs of having had glandular fever but have no re3collection of this
*illness started as severe flu after wild camping in the lake district however the doctors tell me not to even consider lyme's disease as its really rare.( this i have tried fighting as prior to thgis i was an outdoor instructor and spend many weeks of a year in wales/scotland hill walking and camping etc etc).
*I disagree that CBT is effective in treating ME and have found the easist way is to start by doing NOTHING and then slowly create a routine and add to my daily routine and just monitor how im feeling.
Anyways. this was only meant to be a quick introduction and a chance to say hi but guess im feeling vocal today.
Its great to have found a forum linked to this and i really cant believe i didnt think about looking for one before.