09-07-2010, 01:08 PM
Having had m.e. for about twelve years now, diagnosed for eight and suffered during those years greatly, i have decided i am going to recover.
I will post anything here that I have tried in the hope that it will help someone else.
1. Get B12 tested.
I finally had mine tested last year and found I was deficient and after having injections my brain fuzziness was better and my bone pain in my legs has gone. If your doctor is willing to try you on B12 injections maybe worth giving a go as it may help some symptoms and you cannot overdose on B12. Get tested and ask for the result with the reference range.
2. Get thyroid tested.
preferably TSH, free T3 and free T4 and reverse T3 if possible, ask your doctor, he may do it, but most likely to do only TSH. Get tested regularly, about evry six months, mine has just gone into 'hypo' range and was tested four months ago.
3.Rest.
Rest is so important, proper lie down under the duvet type rest, no sensory input at all.
4. Relaxation/meditation
Initially I did 4 a day, half hour guided meditations on a cd.
Once a day is a good thing to keep up.
5. Sleep
At least 8 hours good sleep a night, I need 9 to 10 hours, preferably the same time every night.
More to come.
Other useful info on internet,for those who can use it:-
Dr myhill
Getyourlifebackfromme
Thyroiduk
Action4me
M.E. Association
More to come, Liz
I will post anything here that I have tried in the hope that it will help someone else.
1. Get B12 tested.
I finally had mine tested last year and found I was deficient and after having injections my brain fuzziness was better and my bone pain in my legs has gone. If your doctor is willing to try you on B12 injections maybe worth giving a go as it may help some symptoms and you cannot overdose on B12. Get tested and ask for the result with the reference range.
2. Get thyroid tested.
preferably TSH, free T3 and free T4 and reverse T3 if possible, ask your doctor, he may do it, but most likely to do only TSH. Get tested regularly, about evry six months, mine has just gone into 'hypo' range and was tested four months ago.
3.Rest.
Rest is so important, proper lie down under the duvet type rest, no sensory input at all.
4. Relaxation/meditation
Initially I did 4 a day, half hour guided meditations on a cd.
Once a day is a good thing to keep up.
5. Sleep
At least 8 hours good sleep a night, I need 9 to 10 hours, preferably the same time every night.
More to come.
Other useful info on internet,for those who can use it:-
Dr myhill
Getyourlifebackfromme
Thyroiduk
Action4me
M.E. Association
More to come, Liz