http://meshcornwall.org/forum/ Tue, 07 Sep 2010 00:59:25 +0000 MyBB http://meshcornwall.org/forum/showthread.php?tid=107 Mon, 06 Sep 2010 19:59:33 +0000 http://meshcornwall.org/forum/showthread.php?tid=107 Have anxiety, panic attacs or troube sleeping?
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Take Paxil and feel the happiness!]]> http://meshcornwall.org/forum/showthread.php?tid=106 Wed, 01 Sep 2010 12:00:36 +0000 http://meshcornwall.org/forum/showthread.php?tid=106 http://meshcornwall.org/forum/showthread.php?tid=105 Mon, 30 Aug 2010 13:50:57 +0000 http://meshcornwall.org/forum/showthread.php?tid=105 I've just signed up for a months treatment at the Merlin Centre, St Austell. I was wondering if anyone else has tried the treatment?
If so how did the results go?

I've been diagnosed with CFS/ME by my G/P in June having been poorly since Nov last year and have an appointment in Oct with Mr Pinching. I'm hoping this treatment may speed up my recovery.]]> I've just signed up for a months treatment at the Merlin Centre, St Austell. I was wondering if anyone else has tried the treatment?
If so how did the results go?

I've been diagnosed with CFS/ME by my G/P in June having been poorly since Nov last year and have an appointment in Oct with Mr Pinching. I'm hoping this treatment may speed up my recovery.]]> http://meshcornwall.org/forum/showthread.php?tid=104 Thu, 26 Aug 2010 16:14:21 +0000 http://meshcornwall.org/forum/showthread.php?tid=104 just joined MESH great joining pack and a forum to boot.]]> just joined MESH great joining pack and a forum to boot.]]> http://meshcornwall.org/forum/showthread.php?tid=103 Tue, 27 Jul 2010 11:02:22 +0000 http://meshcornwall.org/forum/showthread.php?tid=103 http://meshcornwall.org/forum/showthread.php?tid=96 Wed, 14 Jul 2010 12:40:37 +0000 http://meshcornwall.org/forum/showthread.php?tid=96 I am thinking of going to try the Lightning process as i am getting very fed up, my relationship is stuggling and most of my friends think i am lazy and that i should push through it!!!

There is a lady in Deveron that is qualified for this thou it costs £600, has anybody had any experiance of it or know what happens??

will be very greatful for any help/advice.

Holly]]> I am thinking of going to try the Lightning process as i am getting very fed up, my relationship is stuggling and most of my friends think i am lazy and that i should push through it!!!

There is a lady in Deveron that is qualified for this thou it costs £600, has anybody had any experiance of it or know what happens??

will be very greatful for any help/advice.

Holly]]> http://meshcornwall.org/forum/showthread.php?tid=92 Tue, 13 Jul 2010 17:23:28 +0000 http://meshcornwall.org/forum/showthread.php?tid=92
I am wondering if any of you here on the forum are having problems/troubles with the DWP/ATOS..
I am finding them a nightmare,and quite honestly they are driving me to distraction and making my conditions worse than they were before.

I'd like to hear from anyone else who is caught up in their games,because thats how they come over,like they are playing a game,trying to catch you out.They obviously need a lesson in CFS/ME/FM Syndromes.

Please use the poll at the top of this Thread, Thankyou

Gabby]]>
I am wondering if any of you here on the forum are having problems/troubles with the DWP/ATOS..
I am finding them a nightmare,and quite honestly they are driving me to distraction and making my conditions worse than they were before.

I'd like to hear from anyone else who is caught up in their games,because thats how they come over,like they are playing a game,trying to catch you out.They obviously need a lesson in CFS/ME/FM Syndromes.

Please use the poll at the top of this Thread, Thankyou

Gabby]]> http://meshcornwall.org/forum/showthread.php?tid=91 Tue, 13 Jul 2010 17:02:09 +0000 http://meshcornwall.org/forum/showthread.php?tid=91
Newbie Here.

My name is Gabby,I live in Cornwall.Have suffered with Fibromyalgia and ME for over 7 years,but only diagnosed 2 years 8 months ago,after many many tests ect
The Professor diagnosed me with FM/ME because he thinks (and me thinks) that the pain I suffer gives me the ME part of my condition.
I was just relieved to be diagnosed,I was fed up not being able to tell my Family and Friends what exactly was wrong with me !!
Glad I found the Forum,wandered over from the Mesh Site.

As our days go,please try and have a good day ,

Gabby]]>
Newbie Here.

My name is Gabby,I live in Cornwall.Have suffered with Fibromyalgia and ME for over 7 years,but only diagnosed 2 years 8 months ago,after many many tests ect
The Professor diagnosed me with FM/ME because he thinks (and me thinks) that the pain I suffer gives me the ME part of my condition.
I was just relieved to be diagnosed,I was fed up not being able to tell my Family and Friends what exactly was wrong with me !!
Glad I found the Forum,wandered over from the Mesh Site.

As our days go,please try and have a good day ,

Gabby]]> http://meshcornwall.org/forum/showthread.php?tid=78 Fri, 09 Jul 2010 13:08:34 +0000 http://meshcornwall.org/forum/showthread.php?tid=78 I will post anything here that I have tried in the hope that it will help someone else.

1. Get B12 tested.
I finally had mine tested last year and found I was deficient and after having injections my brain fuzziness was better and my bone pain in my legs has gone. If your doctor is willing to try you on B12 injections maybe worth giving a go as it may help some symptoms and you cannot overdose on B12. Get tested and ask for the result with the reference range.

2. Get thyroid tested.
preferably TSH, free T3 and free T4 and reverse T3 if possible, ask your doctor, he may do it, but most likely to do only TSH. Get tested regularly, about evry six months, mine has just gone into 'hypo' range and was tested four months ago.

3.Rest.
Rest is so important, proper lie down under the duvet type rest, no sensory input at all.

4. Relaxation/meditation
Initially I did 4 a day, half hour guided meditations on a cd.
Once a day is a good thing to keep up.

5. Sleep
At least 8 hours good sleep a night, I need 9 to 10 hours, preferably the same time every night.

More to come.


Other useful info on internet,for those who can use it:-
Dr myhill
Getyourlifebackfromme
Thyroiduk
Action4me
M.E. Association

More to come, Liz]]> I will post anything here that I have tried in the hope that it will help someone else.

1. Get B12 tested.
I finally had mine tested last year and found I was deficient and after having injections my brain fuzziness was better and my bone pain in my legs has gone. If your doctor is willing to try you on B12 injections maybe worth giving a go as it may help some symptoms and you cannot overdose on B12. Get tested and ask for the result with the reference range.

2. Get thyroid tested.
preferably TSH, free T3 and free T4 and reverse T3 if possible, ask your doctor, he may do it, but most likely to do only TSH. Get tested regularly, about evry six months, mine has just gone into 'hypo' range and was tested four months ago.

3.Rest.
Rest is so important, proper lie down under the duvet type rest, no sensory input at all.

4. Relaxation/meditation
Initially I did 4 a day, half hour guided meditations on a cd.
Once a day is a good thing to keep up.

5. Sleep
At least 8 hours good sleep a night, I need 9 to 10 hours, preferably the same time every night.

More to come.


Other useful info on internet,for those who can use it:-
Dr myhill
Getyourlifebackfromme
Thyroiduk
Action4me
M.E. Association

More to come, Liz]]> http://meshcornwall.org/forum/showthread.php?tid=37 Fri, 25 Jun 2010 19:59:29 +0000 http://meshcornwall.org/forum/showthread.php?tid=37
I was wondering if any of you out there know of any support groups/help that is in the Penzance area. I have been diagnosed for six months now, i saw Dr Fullick in Dec and that was it.

so just really looking for someone to talk to about symptoms and whats happening in life.

Thank you
Holly]]>
I was wondering if any of you out there know of any support groups/help that is in the Penzance area. I have been diagnosed for six months now, i saw Dr Fullick in Dec and that was it.

so just really looking for someone to talk to about symptoms and whats happening in life.

Thank you
Holly]]> http://meshcornwall.org/forum/showthread.php?tid=20 Wed, 19 May 2010 16:51:26 +0000 http://meshcornwall.org/forum/showthread.php?tid=20 I rang my bank and remembered my password, security number and the answers to all the security questions first time!!!! Definitely a first, don't think I have ever managed that before, even prior to having the excuse of ME brainfog. ]]> I rang my bank and remembered my password, security number and the answers to all the security questions first time!!!! Definitely a first, don't think I have ever managed that before, even prior to having the excuse of ME brainfog. ]]> http://meshcornwall.org/forum/showthread.php?tid=19 Tue, 13 Apr 2010 13:42:11 +0000 http://meshcornwall.org/forum/showthread.php?tid=19 ]]> ]]> http://meshcornwall.org/forum/showthread.php?tid=18 Sat, 03 Apr 2010 16:03:19 +0000 http://meshcornwall.org/forum/showthread.php?tid=18
My name is Laura Harrison, I am 27 years old and live near Truro (about 10 minutes away). I have been to see Professor Pinching a on the 4th March 210 and was diagnosed with possible ME/CFS and sever Irritable Bowel Syndrome (IBS).

I haven't been very well with it for the last 18 months, was hospitalised on May last year for a week because I wasn't eating was very unwell, I had lots of tests to rule out other problems they thought it could be like Chrones Disease, and eventually a different consultant mentioned ME/CFS and was referred to Prof Pinching, who I found was very helpful.

So the last 18th months plus hasn't been very nice for me. Also last Sunday while watching my partners 7 year old son play football I ended up collapsing but luckily there was a paramedic (off duty) there who was also watching his son play football, he said my blood pressure went really low, not sure if this is part of ME/CFS or just one of those things.

Hope everyone else is ok and hopefully will get to know some of you. Also will be attending the next meeting in St Austell on the 20th April at 6.30 pm which Prof Pinching will be doing a talk.

Speak to you soon.

Laura xx]]>
My name is Laura Harrison, I am 27 years old and live near Truro (about 10 minutes away). I have been to see Professor Pinching a on the 4th March 210 and was diagnosed with possible ME/CFS and sever Irritable Bowel Syndrome (IBS).

I haven't been very well with it for the last 18 months, was hospitalised on May last year for a week because I wasn't eating was very unwell, I had lots of tests to rule out other problems they thought it could be like Chrones Disease, and eventually a different consultant mentioned ME/CFS and was referred to Prof Pinching, who I found was very helpful.

So the last 18th months plus hasn't been very nice for me. Also last Sunday while watching my partners 7 year old son play football I ended up collapsing but luckily there was a paramedic (off duty) there who was also watching his son play football, he said my blood pressure went really low, not sure if this is part of ME/CFS or just one of those things.

Hope everyone else is ok and hopefully will get to know some of you. Also will be attending the next meeting in St Austell on the 20th April at 6.30 pm which Prof Pinching will be doing a talk.

Speak to you soon.

Laura xx]]> http://meshcornwall.org/forum/showthread.php?tid=17 Thu, 01 Apr 2010 17:20:25 +0000 http://meshcornwall.org/forum/showthread.php?tid=17
I visited a food allergist today for help with a nasal drip problem. She had to stop testing (using kinesiology) after about five substances because I was showing sensitivity to everything and my arm was so weak. She did repeat the test with my husband's help but had the same results. She said (which my GP warned me she would) I had candida.

I've spent the afternoon researching candida and am amazed at the similiaraties of symptoms with M.E.. I know researching M.E. it says those with M.E. usually have candida too, so my questions to you are:

1. Have you or do you know anyone who has/had M.E. but has also been treated for candida and recovered?

2. Has anyone been treated for candida whilst also being diagnosed with M.E. but continued to have symptoms of M.E.?

3. Has anyone else been tested for candida?

4. Does the NHS recognise candida (can not find much information on the NHS website and nothing on the NICE website, which indicates they don't)?

I can not help wondering; what if M.E. is candida but just with another name. It's treatable so surely thousands of us would not have to spend months/years feeling ill. Maybe I am just being hopeful because as one member said, "I'm sick and tired of being sick and tired". Although, I must admit on one hand I'm grateful for a diagnosis but on the other I am dismayed.

If anyone else has any experiences or comments, they would be greatly appreciated.]]>
I visited a food allergist today for help with a nasal drip problem. She had to stop testing (using kinesiology) after about five substances because I was showing sensitivity to everything and my arm was so weak. She did repeat the test with my husband's help but had the same results. She said (which my GP warned me she would) I had candida.

I've spent the afternoon researching candida and am amazed at the similiaraties of symptoms with M.E.. I know researching M.E. it says those with M.E. usually have candida too, so my questions to you are:

1. Have you or do you know anyone who has/had M.E. but has also been treated for candida and recovered?

2. Has anyone been treated for candida whilst also being diagnosed with M.E. but continued to have symptoms of M.E.?

3. Has anyone else been tested for candida?

4. Does the NHS recognise candida (can not find much information on the NHS website and nothing on the NICE website, which indicates they don't)?

I can not help wondering; what if M.E. is candida but just with another name. It's treatable so surely thousands of us would not have to spend months/years feeling ill. Maybe I am just being hopeful because as one member said, "I'm sick and tired of being sick and tired". Although, I must admit on one hand I'm grateful for a diagnosis but on the other I am dismayed.

If anyone else has any experiences or comments, they would be greatly appreciated.]]> http://meshcornwall.org/forum/showthread.php?tid=16 Thu, 25 Mar 2010 12:29:03 +0000 http://meshcornwall.org/forum/showthread.php?tid=16
By the time you read through this YOU WILL UNDERSTAND 'TANJOOBERRYMUTTS'

I am sure I have spoken to this person, or at least his brother

The following is a telephone exchange between a hotel guest and room-service in a hotel ...

Room Service : "Morrin. Roon sirbees."

Guest : "Sorry, I thought I dialed room-service."

Room Service: " Rye . Roon sirbees...morrin! Joowish to oddor sunteen???"

Guest: "Uh..... Yes, I'd like to order bacon and eggs."


Room Service: "Ow ulai den?"

Guest: ".....What??"

Room Service: "Ow ulai den?!?... Pryed, boyud , pochd?"

Guest: "Oh, the eggs! How do I like them? Sorry..Scrambled, please."

Room Service: "Ow ulai dee bayken? Creepse?"

Guest: "Crisp will be fine."

Room Service: "Hokay. Ansahn toes?"

Guest: "What?"

Room Service: "An toes. ulaisahn toes?"

Guest: "I.... Don't think so.."

RoomService: "No?Udo wan sahn toes???"

Guest: "I feel really bad about this, but I don't know what 'udo wan sahn toes'
means."

RoomService: "Toes! Toes!...WhyUoo donwan toes? Ow bow Anglish moppin we botter?"

Guest: "Oh, English muffin! !! I've got it! You were saying 'toast'... Fine...Yes, an English muffin will be fine."

RoomService: "We botter?"

Guest: "No, just put the botter on the side."

RoomService: "Wad?!?"

Guest: "I mean butter... Just put the butter on the side."

RoomService: "Copy?"

Guest: "Excuse me?"


RoomService: "Copy...tea.. meel?"

Guest: "Yes. Coffee, please... And that's everything."

RoomService: "One Minnie. Scramah egg, creepse bayken, Anglish moppin, we botter on sigh and copy ... Rye ??"

Guest: "Whatever you say."

RoomService: "Tanjooberrymutts."


Guest: "You're welcome"


Remember I said "By the time you read through this YOU WILL UNDERSTAND 'TANJOOBERRYMUTTS'
......and you do, don't you?!!!]]>
By the time you read through this YOU WILL UNDERSTAND 'TANJOOBERRYMUTTS'

I am sure I have spoken to this person, or at least his brother

The following is a telephone exchange between a hotel guest and room-service in a hotel ...

Room Service : "Morrin. Roon sirbees."

Guest : "Sorry, I thought I dialed room-service."

Room Service: " Rye . Roon sirbees...morrin! Joowish to oddor sunteen???"

Guest: "Uh..... Yes, I'd like to order bacon and eggs."


Room Service: "Ow ulai den?"

Guest: ".....What??"

Room Service: "Ow ulai den?!?... Pryed, boyud , pochd?"

Guest: "Oh, the eggs! How do I like them? Sorry..Scrambled, please."

Room Service: "Ow ulai dee bayken? Creepse?"

Guest: "Crisp will be fine."

Room Service: "Hokay. Ansahn toes?"

Guest: "What?"

Room Service: "An toes. ulaisahn toes?"

Guest: "I.... Don't think so.."

RoomService: "No?Udo wan sahn toes???"

Guest: "I feel really bad about this, but I don't know what 'udo wan sahn toes'
means."

RoomService: "Toes! Toes!...WhyUoo donwan toes? Ow bow Anglish moppin we botter?"

Guest: "Oh, English muffin! !! I've got it! You were saying 'toast'... Fine...Yes, an English muffin will be fine."

RoomService: "We botter?"

Guest: "No, just put the botter on the side."

RoomService: "Wad?!?"

Guest: "I mean butter... Just put the butter on the side."

RoomService: "Copy?"

Guest: "Excuse me?"


RoomService: "Copy...tea.. meel?"

Guest: "Yes. Coffee, please... And that's everything."

RoomService: "One Minnie. Scramah egg, creepse bayken, Anglish moppin, we botter on sigh and copy ... Rye ??"

Guest: "Whatever you say."

RoomService: "Tanjooberrymutts."


Guest: "You're welcome"


Remember I said "By the time you read through this YOU WILL UNDERSTAND 'TANJOOBERRYMUTTS'
......and you do, don't you?!!!]]> http://meshcornwall.org/forum/showthread.php?tid=15 Mon, 22 Mar 2010 00:43:47 +0000 http://meshcornwall.org/forum/showthread.php?tid=15 I am at my wits end - I have one daughter who has had ME for over 2 years and im 90%sure my other daughter has it but loads worse. She can not even crawl today ! I have been given my next appointment for July. All tests and scans have come back clear ! ]]> I am at my wits end - I have one daughter who has had ME for over 2 years and im 90%sure my other daughter has it but loads worse. She can not even crawl today ! I have been given my next appointment for July. All tests and scans have come back clear ! ]]> http://meshcornwall.org/forum/showthread.php?tid=14 Tue, 16 Mar 2010 10:06:44 +0000 http://meshcornwall.org/forum/showthread.php?tid=14 After years of m.e. diagnosis, I went back to my doctor with the normal 'I am sick and tired of being sick and tired'. She did some more blood tests not expecting anything to show,but one came back positive. It seems I have a vitamin B12 deficiency. Since having my injections, I now have to have one every three months, my brain has come back! and the awful bone pain in my lower legs has disappeared. The injections have helped a lot, although not solving other problems, it has helped me to come up a level.
I checked with my nurse and apparently I had never had a B12 test in all the time I had been diagnosed, which I consider a disgrace. And not one health professional had asked me, or suggested that I might have one! So I am letting you all know my story just in case it may help someone out there. Don't presume that just because the doctor has done some blood tests that they have tested you for B12. Check and get it done.It just may help.]]> After years of m.e. diagnosis, I went back to my doctor with the normal 'I am sick and tired of being sick and tired'. She did some more blood tests not expecting anything to show,but one came back positive. It seems I have a vitamin B12 deficiency. Since having my injections, I now have to have one every three months, my brain has come back! and the awful bone pain in my lower legs has disappeared. The injections have helped a lot, although not solving other problems, it has helped me to come up a level.
I checked with my nurse and apparently I had never had a B12 test in all the time I had been diagnosed, which I consider a disgrace. And not one health professional had asked me, or suggested that I might have one! So I am letting you all know my story just in case it may help someone out there. Don't presume that just because the doctor has done some blood tests that they have tested you for B12. Check and get it done.It just may help.]]> http://meshcornwall.org/forum/showthread.php?tid=13 Mon, 15 Mar 2010 13:38:27 +0000 http://meshcornwall.org/forum/showthread.php?tid=13 My name is Holly and i live near penzance, i was diagnosed with ME in december and i am still trying to get my head round it.

I think i might have had this for longer but it was put down to me having anaemia, so i am glad that i have finally found the answer.

Would love to hear from everybody and any advice would be welcome.

Holly]]> My name is Holly and i live near penzance, i was diagnosed with ME in december and i am still trying to get my head round it.

I think i might have had this for longer but it was put down to me having anaemia, so i am glad that i have finally found the answer.

Would love to hear from everybody and any advice would be welcome.

Holly]]> http://meshcornwall.org/forum/showthread.php?tid=12 Wed, 10 Mar 2010 20:39:13 +0000 http://meshcornwall.org/forum/showthread.php?tid=12 .
I believe mine started after a really bad flu bug and my husband being on life support for many weeks, i totally burnt out and never got back up again. This is such a lonely illness and although i pace i spend each day pretty much alone, i think my husband is finding it hard to understand just what really is going on even tho we did a course, so i still feel like i cannot talk about it much. I feel very embarrassed when i have to tell anyone about my illness because so many people including gps look at me as if i'm making it all up :dodgy, its just not fair. I have now sent my membership off to MESH and i hope things change a bit, it will be nice to speak to people that understand me.
I'm extremely glad i have found this forum ]]> .
I believe mine started after a really bad flu bug and my husband being on life support for many weeks, i totally burnt out and never got back up again. This is such a lonely illness and although i pace i spend each day pretty much alone, i think my husband is finding it hard to understand just what really is going on even tho we did a course, so i still feel like i cannot talk about it much. I feel very embarrassed when i have to tell anyone about my illness because so many people including gps look at me as if i'm making it all up :dodgy, its just not fair. I have now sent my membership off to MESH and i hope things change a bit, it will be nice to speak to people that understand me.
I'm extremely glad i have found this forum ]]> http://meshcornwall.org/forum/showthread.php?tid=11 Sun, 21 Feb 2010 13:05:12 +0000 http://meshcornwall.org/forum/showthread.php?tid=11
I'm Karen and have had M.E./CFS for over 3 years now. Still learning to pace and accept!!! I live in Mawgan, near Helston and would be great to talk to others about this illness and the effects on mind, body and spirit. So many of my friends and family still find it hard to comprehend.

Look forward to hearing from you all......

Big gentle hugs

Karen]]>
I'm Karen and have had M.E./CFS for over 3 years now. Still learning to pace and accept!!! I live in Mawgan, near Helston and would be great to talk to others about this illness and the effects on mind, body and spirit. So many of my friends and family still find it hard to comprehend.

Look forward to hearing from you all......

Big gentle hugs

Karen]]>